I’ve always wanted to grow into my maternal grandmother’s cheerfulness, but this past year I needed to immediately inherit that happy patience that does not get bored or angry waiting around, and that ability to turn a terrible day into a story that has everyone else hysterical with laughter. One of the great things about being back to Atlanta is getting to be with her lots at her favorite time of year.
Monthly Archives: December 2009
After two weeks of vainly attempting to get to the bottom of the laundry basket, today I succeeded. Lucy enjoyed another good day at school, I cooked dinner and we ate together, and no one has anything left of our horrible cold (besides Garrick, whose nose issues are perpetual). I’m hopeful at last that some order will start to be restored in our home and life.
The best sign is that the children are progressively enjoying each other more.
Lucy has finished her proton radiation! She went for her final treatment in Jacksonville last week followed by a Hello Kitty party thrown by the staff, then headed straight to Thanksgiving celebration
in Auburn for a couple of days, then traveled all the way home Thursday night.
Exhaustion, a bad cold, and re-adjustment
Dr. Marcus (shown here with Hello Kitty because Lucy had just woken up and did not feel like posing; he also holds Lucy’s card for him which came from Swaziland), her radiation oncologist, informed us that the latest research gauging the
efficacy of proton radiation in craniopharyngiomas shows a phenomenal success rate. He does not expect Lucy to have any other side effects related to the treatment itself from this point because of the small amount of brain that was radiated. We have joked that she has not lost any hair, but I have been losing mine for months– a symptom I actually found common among the other patients’ mothers, apparently an outcropping of stress!
Lucy feels anxious to understand what else is ahead of her: how many MRIs, what kind of IV, etc. She feels dislocated after getting used to her routine in Florida.
We are having lots of conversations… It is wonderful, however, to see a safe and
calm look return to her eyes after so many days in a row colored with anesthesia and the weariness of her unrelenting effort toward courage.
We remain grateful for the wonderful staff at the Florida Proton Institute, and for the friends we met who were making the same journey– they remain always in our hearts.