Monthly Archives: December 2009

500 Westover

I’ve always wanted to grow into my maternal grandmother’s cheerfulness, but this past year I needed  to immediately inherit that happy patience that does not get bored or angry waiting around, and that ability to turn a terrible day into a story that has everyone else hysterical with laughter.  One of the great things about being back to Atlanta is getting to be with her lots at her favorite time of year.


Advertisements

2 Comments

Filed under Uncategorized

Small Beginnings

After two weeks of vainly attempting to get to the bottom of the laundry basket, today I succeeded.  Lucy enjoyed another good day at school, I cooked dinner and we ate together, and no one has anything left of our horrible cold (besides Garrick, whose nose issues are perpetual).  I’m hopeful at last that some order will start to be restored in our home and life.

The best sign is that the children are progressively enjoying each other more.

2 Comments

Filed under Uncategorized

Brave Gift

Jack’s name is short for John Richard III, which means gift and brave.  He has been both during all of our recent upheaval. Here are a few shots of what he’s been up to, several of which seem to involve costumes… proving that he’s mine, despite the big brown eyes.

Sequoyah, father of the Cherokee alphabet

building a treehouse on Lookout Mountain

shooting Anne’s bow in Auburn

westside trains

laser fighting with Terrell

holding Lucy's hand into treatment

2 Comments

Filed under Uncategorized

Wow! Finished!

Lucy and Nurse Gina

Lucy has finished her proton radiation! She went for her final treatment in Jacksonville last week followed by a Hello Kitty party thrown by the staff, then headed straight to Thanksgiving celebration

Uncle Stephen

in Auburn for a couple of days, then traveled all the way home Thursday night.

Uncle Stuart

Exhaustion, a bad cold, and re-adjustment

to family and home have slowed our full acceptance of the good news, like when exams are over but the stress lingers…

Dr Marcus

Dr. Marcus (shown here with Hello Kitty because Lucy had just woken up and did not feel like posing; he also holds Lucy’s card for him which came from Swaziland), her radiation oncologist, informed us that the latest research gauging the

Katie knew the proper kind of cake!

efficacy of proton radiation in craniopharyngiomas shows a phenomenal success rate. He does not expect Lucy to have any other side effects related to the treatment itself from this point because of the small amount of brain that was radiated. We have joked that she has not lost any hair, but I have been losing mine for months– a symptom I actually found common among the other patients’ mothers, apparently an outcropping of stress!

Lucy feels anxious to understand what else is ahead of her: how many MRIs, what kind of IV, etc. She feels dislocated after getting used to her routine in Florida.

We are having lots of conversations… It is wonderful, however, to see a safe and

calm look return to her eyes after so many days in a row colored with anesthesia and the weariness of her unrelenting effort toward courage.

We remain grateful for the wonderful staff at the Florida Proton Institute, and for the friends we met who were making the same journey– they remain always in our hearts.

5 Comments

Filed under Uncategorized